INSTITUTE FOR COMMUNITY BASED REHABILITATION

Objectives of Community Based Rehabilitation

Assisting to set up Special Schools in various parts of Kerala

Bringing the disabled children and their parents in to mainstream

Creating awareness among the parents of the disabled children about
   medical care, need & availability

Delivering knowledge about habilitation methods to other similar institutes
   who need it.

Educating the community to accept disability and help them to identify it
  as early as possible.

Setting up new special schools
1. Studies all over the world indicate that the incidence of Cerebral Palsy & Autism is about 5-6 in thousand births. Some localized studies in Kerala also confirm these figures. This means that, out of 37 lac children, under the age of 6 in Kerala (Source: Census of 2001), over 200000 are affected by CP, Autism and Down Syndrome. The incidence of Learning Disability is 12-14%.  In far-flung areas, rehabilitation is certainly not possible for want of adequate number of institutions. In fact, in the whole state of Kerala with a population of 3.2 Crores and population of 37 lacs under the age of 6, there are hardly a handful of institutions attempting specific rehabilitation for children with Cerebral Palsy, Autism and Down syndrome separately.

2. Adarsh has been successful in motivating others interested in the problems of differently abled children. The following special schools have come up as a result of motivation of and with the technical support of Adarsh. 
 

NAME OF SCHOOL

DATE OF COMMENCEMENT

TOTAL NO OF STUDENTS(September 2008)

LOCATION


Jothis
 

June 2003

35

Kottayam


Chaithanya
 

July 2003

60

Palakkad

Ashraya  

September 2004

17

Perumbavoor, Ernakulam Dt.

Buds

9/07/04

35

Venganoor-Thiruvananthapuram Dt

Thejus

22/02/05

15

Vechoor-

Kottayam Dt

Buds

3/07/05

20

Tannirmukam-Alappuzha Dt

Santhusta Sadanam

16/07/05

7

Nettur-

Ernakulam

Buds

21/08/05

21

Sooranadu-

Kollam Dt

Valsan Memorial
 

02/10/06

24

Kadavanthara- Ernakulam


Jama-Ath-Special School
 

07/02/07

32

Kuzhivelipadi- Ernakulam

Little Flower English Medium School (Integrated Education system)

14/11/2007

5

Udayamperoor, Ernakulam

NKM Charitable Trust- Special school for CP children

01/01/2008

18

Kallettumkara, Irinjalakkuda, Trissur

AMMA Special School 

01/09/2008 

 

 

Pappanamcode, Trivandrum 

 

     
 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 
 


We could also extend our technical expertise to 4 existing special schools, where children with Cerebral Palsy and Autism were not getting proper rehabilitation assistance. There, we usually do all the basic assessment and intervention according to the need of the child. During the initial period, we send our teachers to the school for technical support who are also given training at Adarsh. Such technical support was given to the following special schools:
 

Daya

Payangadi, Kannur Dt

Nirmala Sisubhavan Orphanage

Trivandrum

We Care

Aluva, Ernakulam

KIDS Special School

Kannadi, Palakkad


Medical assistance
Adarsh believes that the medical problems that children with challenges face cannot be ignored by special schools on the ground that 'disability is not a medical problem'. At Adarsh we believe that the correct position is that 'disability is not only a medical problem' and that, therefore, unless the medical problems of the affected children are also attended to simultaneously with therapy , development of skills and academic training , the rehabilitation of the child gets delayed/affected to that extent. It has, therefore, been our effort to associate experts in several medical disciplines in which our children need help from doctors. We have a panel of distinguished medical practitioners of various disciplines. We take advice from them on all medical problems, arrange for periodical and special examination of children by the concerned specialist and even help in arranging for surgery and post surgical assistance.

PANEL OF EXPERTS

1. Dr Abraham K Paul MD ( Ped), DCH 
Pediatrician, Cochi Hospital, Ernakulam

2. Dr Deepak Sharan
MS Ortho, DNB Ortho, Dip.Ortho, MSC Orthopedic Engineering (UK),

3. Dr. S.Sachidanada Kamath, MD (Ped)
Pediatrician, Welcare Hospital, Ernakulam

4. Dr. Chalam Das, MD (Psychiatry)
Child Psychiatrist

5. Dr. Neena Shilen MD (Pediatrician), FAAP (USA)
Developmental Pediatrics (Sunrise Hospital)

6. Dr. Biju Raju, MS., FNB (Vitreoretinal Diseases)
Eye Surgeon, Rejnini Eye Clinic, Vyttila, Ernakulam.

7. Dr (LT.Col) MathewsT. George, MS

ENT Surgeon, SHRAVAN, Vyttila, Ernakulam

8. Ms.Prabha Ranganathan, M Phil (Psychology)

9. Shri.Biju Nirmal Jacob- MPT ( Physiotherapy)

RISK BABY UNIT

Growth and Development are the two complementary processes peculiar to children, which influence the quality of life in their later life. Advances in the peri-natal care and the establishment of neonatal nurseries have improved the survival chance of many newborns that would otherwise have succumbed. This, however, tends to increase childhood developmental delays, speech problems, behavioral problems, attention deficit and hyper-kinetic disorders and scholastic backwardness. Very often, these problems are identified late, may be at school going age by which time the rehabilitation measures that can be taken, are not able to bring out the best in the child. Hence, if special care/ intensive care services are available in a hospital, it should be mandatory that neonatal follow up and early stimulation service are also made available.
In an increasingly competitive world it is essential to ensure that a child grows and develops to its full developmental potential. Even for a normal healthy newborn, parenting skills are necessary. Medical science has developed to such an extent that it is now in a position to save the lives of a number of a very low birth weight babies, asphyxiated and sick babies. This highlights the need for A "Risk baby Unit", where a trained Clinical Child Developmental Therapist adopts early detection practices for developmental delay, subsequently leading on to early intervention therapy. There are many sophisticated, scientific methods for the assessment of development in children, simple screening procedures which can be used by the community by field workers and can be propagated even among illiterate mothers.

A child is said to have developmental delay when he/she does not attain the specified developmental milestones at the excepted times?

Adarsh was able set up such a RISK BABY UNIT in August 2005 in association with Child Developmental Centre, Trivandrum at 3 major Hospitals in Ernakulam District, namely Ernakulam Medical Centre (2 days), Lakshmi Hospital (2 days)  PVS Hospital (1 day). In these hospitals, this unit works under the close supervision of Neonatology and Pediatric departments.

What does the Child Development Therapist do ?
Determines the existence of a developmental delay
Identifies the strengths and needs
Develops strategies for intervention
Determines progress on significant developmental achievements
Serves as a medium for reporting to parents about the child?s progress
Counsels parents

For this, the Therapist uses various assessment tools, they are:

Trivandrum Developmental Screening Chart (TDSC)
Denver Developmental Screening Test (DDST)
Neurological Evaluation- Amiel-Tison Passive Angles Method
CDC grading for motor milestones (Child Development Center-Trivandrum)
Developmental Observation Cards (DOC)
Assessment of Hearing loss in Early Infancy


The objectives of this unit are:

1. Stimulating the child through normal developmental channels
2. Prevention of developmental delay
3. Prevention of Asymmetry and Abnormalities

   To prevent atrophy of muscles
   To prevent deformity of joints
   To prevent contractures of joints
   To decrease the tone of muscles
   To prevent the tightening of tendons


4.Detection of transient abnormalities and minimization of persistent abnormalities

NEW BORN HEARING SCREENING PROGRAMME
ECHO CHECK AUDITORY SCREENER


A New Born Hearing Screening Unit has been set up as a joint project of Adarsh and Indian Academy of Paeditrics Childhood Disability Group. This unit is for checking the hearing ability of newborn children and for further corrective action when needed. The initial check is done through a sophisticated portable machine called "Echo Check Auditory Screener?, which helps to screen the hearing ability of newborn babies as well as children. By this programme it is intended to get all newborn babies routinely screened before they get discharged form the hospital. A trained person visits the selected hospital on a particular day. Arrangements are also made for follow up action in case it is needed. At present Adarsh had made this facility available at the following hospitals:

 Lekshmi Hospital, Aluva
 Shaji Hospital, North Paravur
 KMK Hospital, Aluva
 CDEIRC, Vyttila, Ernkaulam

The babies get screened by the screener, ( manufactured by Otodynamics, Hatfield, U.K) before discharge from the hospital. Protocol followed is based on NHS (U.K) protocol. If the initial test reveals anything abnormal, it is repeated after 2 weeks.

An abnormal result may be got if the middle ear is not aerated as may occur in the first few days of life or, if there is cerumen in the ear canal (the reason why the test is repeated after 2 weeks). If the second test also is abnormal , the baby is subjected to BERA test for confirmation of hearing loss and also for quantification of hearing loss. An abnormal OAE result by ECHOCHECK indicates abnormal cochlear function. Almost all cases of hearing loss in newborns are due to a cochlear pathology.

WHY EARLY SCREENING?

The incidence of hearing loss in general infant population is 0.2 -0.4% (incidence in high risk newborns is 1.5 % - 15%). If hearing loss is present, it should be detected and remedied before the baby is 6 months old, lest the baby should develop impaired speech and language, due to the hearing impairment.

Hearing Screening is a must in the following situations:
Neonates
Birth weight less than 1500gms
Hyper-bilirubinaemia at a serum level requiring exchange transfusion.
Bacterial meningitis.
Apgar scores of 0 to 4 at one minute or 0 to 6 at 5 minute.
Mechanical ventilation lasting 5 days or more.
Ototoxic medications
Family history of hereditary childhood Sensory neural hearing loss.
Intrauterine infection (TORCHS)
Cranio-facial anomalies.
Stigmata or other findings associated with a syndrome known to include a sensory neural and / or conductive hearing loss.

Infants (29 days through 2 years)

Bacterial meningitis.
Ototoxic medications.
Recurrent or persistent otitis media with effusion for at least 3 months.
Parent concern regarding hearing, speech, language and / or developmental delay.
Head trauma with loss of consciousness or skull fracture.
All cases of speech delay, poor speech clarity, poor vocabulary and language development not appropriate to age.

VISUAL STIMULATION LAB

Vision is the primary data gathering system of the human organism. Vision provides the most information to the brain. Only vision can perceive shape, size, color, distance and spatial location all in one glance. Vision is the feedback system for all other developing systems in the young child. An infant?s early development depends on vision, since all the other systems require visual feedback for practice and refinement.

Visual impairment affects the development of brain. So early detection of Visual impairment and intervention are very important in a majority of preterm, low birth weight babies and in other risk babies, the chance of visual impairment is very high; hence, early detection of visual abnormality is very important as it affects the growth and development in the early stages.

Since its inception, Adarsh is giving considerable importance to Early Intervention Therapy. Out of over 180 children over 30 children are in this department. Majority of these children have mild to moderate visual problems. These children regularly undergo visual stimulation. With the help and advice of Dr.Biju Raju, a famous Eye surgeon of Ernakulm practicing at Renjini Eye Clinic, Vyttila (one of our visiting experts), and Adarsh has set up a properly equipped visual stimulation lab. It started functioning from June 2007 onwards. Our intention is to provide this special support not only to the children of Adarsh, but also to children out side Adarsh who have visual problems. We are striving to spread the awareness about this programme through the "Risk baby Unit", in the hope that the services of the therapist would be used to detect early visual problems and for early intervention to enhance the visual capacity of the child.

Home Based Rehabilitation Programme (HBRP)- 

In spite of special schools being setup, there is a section of society which is unable to utilize these benefits, due to lack of awareness, financial difficulties etc. For such sections, Adarsh has set up a "Home Based Rehabilitation programme". It is a group that consists of mainly disabled children and their parents only. Such a group of children has already been formed in the vicinity of Adarsh. It acts as a forum for the parents to discuss and share their problems. In addition,, counseling for the mothers , therapy and academic training are also provided. These children and their mothers are visited by a team of expert contains a Special Educator and a Therapist of  Adarsh  on every day in the week. So that more detailed and individual attention can be given. In this Home Based Rehabilitation unit, where a special teacher visits the house of such challenged children and attends to a programme of therapy and academic /skill training according to the needs of the children. This unit now works  in 9 selected Panchayats in and around Adarsh so that it will be under the supervision of that school. .


Awareness programs through Camps
To create awareness about various disabilities, usually we conduct medical camps, seminars and workshops. Our aim is to bring all the disabled children to mainstream along with their parents. With these programmes, we are able to assess various problems of these challenged children and also to direct them to the appropriate institutions for the remedy of their children?s problems. Eminent people from the concerned field of disability are brought for these programmes so that parents get a comprehensive idea about the scope of rehabilitation of their children.
Though we are dealing children with Cerebral Palsy and Autism only, we conduct camps for children with other challenges too. For this, we have tied up with various special schools, which deal children with various disabilities other than Cerebral palsy and Autism.